Real Stories of Living With aHUS

Alyssa

Diagnosed with aHUS at 21 years old

In 2009, Alyssa was 21 years old and began experiencing unusual symptoms, including nausea, vomiting, swollen eyes, flushed cheeks and difficulty walking. Alyssa’s parents took her to the doctor and when they received abnormal bloodwork, Alyssa was rushed to the hospital, where doctors determined she was in complete kidney failure.

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Donnan

Diagnosed with aHUS at 39 years old

For 12 years, Donnan experienced various unexplained health issues. He was diagnosed and treated for several different ailments, none of which seemed to alleviate his symptoms.

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Erica

Diagnosed with aHUS at 22 years old

Erica was expecting to have a fun family vacation at the beach, but instead spent a week exhausted in bed with a fever, sore throat, and chills.

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Jill

Diagnosed with aHUS at 28 years old

Over several frightening months, Jill went to her doctor repeatedly with softball-sized bruises all over her body. She was 28 and in renal failure, and doctors didn’t know why.

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Julia

Diagnosed with aHUS at 15 years old

Even after her diagnosis, Julia has been able to complete a summer medical program at Georgetown University for high school students interested in a career in medicine.

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Justice

Diagnosed with aHUS at 9 months old

Danielle first noticed something was wrong with her son, Justice, one morning when he was 9 months old.

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