ALEXION CHARITABLE FOUNDATION
A Promise of Belonging
The mission of the Alexion Charitable Foundation is to bring promise, hope and belonging to people living with a rare disease and those who care for them.
The Alexion Charitable Foundation is part of Alexion’s charitable giving approach, which is designed to have the most positive impact possible. We do this through two main impact areas: the Alexion Charitable Foundation and Corporate Giving.
The signature program through which we provide funding from the Alexion Charitable Foundation is called Rare Belonging® and will soon include a particular focus on health equity for rare disease patients.
ANNOUNCEMENT: ACF is accepting grant applications from September 3 – September 27th! Please submit your grant application on CyberGrants – link and detailed guidelines are included below.
Rare Belonging® is a unifying marquee for a suite of funding priorities designed to benefit people affected by one of the over 7,000 rare diseases identified on the Genetic Alliance Disease InfoSearch and Global Genes’ RARE list (Rare Disease). Through investments in strategic partnerships, Rare Belonging® seeks to address the most pressing needs of the Rare Disease Community, ensuring equitable pathways to care, services and resources so that patients, their families and caregivers can lead fulfilling lives.
Funding priorities include:
- Mental Health & Wellbeing: Improving the mental health and wellbeing of people living with rare conditions and their caregivers by tackling systemic hurdles to supports, services, and tools.
- Barriers to Care: Strengthening the diagnostic journey and access to care by minimizing mobility, language, financial and knowledge barriers for people living with rare conditions.
- And newly including Health Equity!
- Health Literacy: Empowering people living with rare conditions, their caregivers, and physicians through improved health literacy across the continuum of care.
The Alexion Charitable Foundation provides funding to third-party, disease-agnostic, nonprofit organizations that design and administer programs that align with the Rare Belonging® Guidelines and Criteria. To apply for a Rare Belonging® grant, first please carefully review the Rare Belonging® Guidelines and Criteria document, which will help your organization determine which best aligns your program or service with the Foundation funding priorities. Organizations can complete and submit a Grant Application and a Project Budget worksheet (both are required).
If you are interested in applying for a health equity grant within the Barriers to Care pillar, please review additional guidelines and proposal guide before submitting your application.
Email ACF@alexion.com if you need assistance.
If anything, living with PNH has made me appreciate my time even more, and given me more drive to get back to doing what I love to do.”JOE LIVING WITH PNH